Pathways for Rare and Orphan Solutions (PROS Foundation)
Also known as Pathways For Rare And Orphan Studies, PROS Foundation, and Pathways for Rare and Orphan Studies.
Pathways for Rare and Orphan Solutions (PROS Foundation) is an organization in CA offering disability services and healthcare. 501(c)(3) non-profit dedicated to helping bring treatments to patients living with rare diseases worldwide.
- Location
- CA
- Services
- Disability services, Healthcare
- Website
- https://prosfoundation.org/
- EIN
- 452238192
Services
Patient registries, natural history studies and research infrastructure
Support for patient registries, natural history studies, care center networks, biobank setup, chart review, records retrieval, focus groups and partner work.
Eligibility: Offered to rare disease patient organizations.
Diagnostic journey and treatment access support
Diagnostic journey support, treatment access support, clinical trial matching and Expanded Access Programs, and connecting patients with organizations and buddies.
Eligibility: Offered to rare disease patient organizations.
Power wheelchairs and treatment funding for MPS IVA patients
Provided power wheelchairs for 3 children; working to raise money for drug treatment for patients in Africa who can't afford therapies.
Questions
What does Pathways for Rare and Orphan Solutions (PROS Foundation) offer?
Pathways for Rare and Orphan Solutions (PROS Foundation) offers Patient registries, natural history studies and research infrastructure, Diagnostic journey and treatment access support, and Power wheelchairs and treatment funding for MPS IVA patients.
Where is Pathways for Rare and Orphan Solutions (PROS Foundation)?
Pathways for Rare and Orphan Solutions (PROS Foundation) is in CA.
How do I contact Pathways for Rare and Orphan Solutions (PROS Foundation)?
To reach Pathways for Rare and Orphan Solutions (PROS Foundation), visit https://prosfoundation.org/.
Who is eligible for Patient registries, natural history studies and research infrastructure?
Eligibility for Patient registries, natural history studies and research infrastructure: Offered to rare disease patient organizations.
Who is eligible for Diagnostic journey and treatment access support?
Eligibility for Diagnostic journey and treatment access support: Offered to rare disease patient organizations.
Last reviewed .